Sunday 13 June 2010

TOO LONG??????

WHY DOES ALL MY COMPUTER WORK TAKE SO LONG THESE DAYS
I HAVE STRUGGLED TO JUST PASTE AND COPY HOW THOSE WORDS SEEM SO INNOCENT WHEN I FIRST BECAME THAT SILVER SURFER WAY BACK IN 2007 AND HERE I AM WRITING A BLOG AND MY WHOLE LIFE STORY OR PART OF IT ANYWAY
THE LAST FEW ENTRIES OF TODAY HAVE RELATED TO OUR NEWSLETTER WHICH SHOULD BE ON IT'S WAY TO YOU ALL AS I WRITE THIS
ONE PIECE OF NEWS FROM THAT IS THAT NEUROSUPPORT WILL BE AT ST GEORGES HALL THIS THURSDAY 17TH JUNE AROUND 10.30 AM TILL ABOUT 3.00 PM FOR ADVICE FOR CARERS I WILL THERE WITH THE WALTON CENTRE TRYING AS MUCH AS WE CAN TO TELL PEOPLE ABOUT WHAT THE WALTON CENTRE DOES AND ENCOURAGE SOME TO SIGN UP AND BECOME MEMBERS AND ALSO INVITE THEM TO OUR "MEET THE GOVERNORS EVENT THAT WE ARE HOLDING 24TH JUNE SEE PREVIOUS POST FOR DETAILS
SO COME ALONG FOR FREE GIFTS AND NEUROSUPPORT IS PROVIDING TEAS AND CAKES ON THE DAY AS WELL AT THE NEUROSUPPORT CENTRE IN NORTON STREET JUST UP THE ROAD FROM THE HALL

HOPE TO SEE YOU ON THE DAY OR ON THURSDAY 24TH

THANKS FOR ALL YOUR SUPPORT

ALAN CLARK

MORE NEWS FROM THE BACK PAGE

VOLUNTEERS MEETING

THE NEXT VOLUNTEERS MEETING WILL BE ON

TUESDAY, 22ND JUNE, 1.00-3.00pm with lunch before the meeting starts. Check the agenda enclosed

Volunteers update

A warm welcome to our new volunteers, Verity Kent., Sally who is on a 13 week placement with WLS Sheryl Brooks and Sharon Campbell. Please say hello & join with me in wishing them an enjoyable experience during their time (whether long or short) with Neurosupport.

ZEN Teachings

4. Always remember you're unique. Just like everyone else.

5. Never test the depth of the water with both feet..

8. If at first you don't succeed, skydiving is not for you.

11. If you tell the truth, you don't have to remember anything.

14. Good judgment comes from bad experience ... and most of that comes from bad judgment.

15. A closed mouth gathers no foot.

17. Generally speaking, you aren't learning much when your lips are moving.

MEET THE WALTON CENTRE GOVERNORS

Where: The Clinical Sciences Building on the University Hospital Aintree site

(next door to the Walton Centre).

When: Thursday, 24th June, between 4.30pm and 7pm

The Merseyside & Cheshire Governors of the Walton Centre are launching a new event. They are asking the public to come along to find out more about the work under way at the Trust and give their opinions on the hospital (the UK’s only specialist neurological NHS foundation Trust). Various neurological charities and other health organisations will also be there to talk to anyone interested in finding out more about specific conditions, including Merseyside Regional Epilepsy Assoc. Alzheimer’s Society, Huntington’s Disease Assoc. and Parkinson’s. Stroke. MS. Carers Liverpool

Everyone is welcome, members and non-members alike. Admission is free and refreshments will be available.

REMEMBERING AMEENA ROBERTS

How do you say goodbye to someone you have worked with for 10 years?

Ameena Roberts was a bit like me, someone who has been part of Neurosupport, on a Tuesday for a long time, along with Jessie (now retired), Margaret (now doing a different day) Wendy and me. Over those 10 years, as I got to know Ameena and her husband Phil, one thing you noticed about her was her smile, she could make the grey day brighter in that moment when you saw her. Her sense of fun and laughter was always with her. She had problems with her health over the years, but she kept smiling through all her bad times, as well as the good.

Over the last 2 years Ameena had been in and out of hospital, (more in than out I’m afraid) but last year she did put in a brief appearance on reception, taking her old job back answering the phones. She and Phil joined us on our canal boat trip in October last year and even when we were all cold towards the end of that day, Ameena still kept smiling. For a brief moment in time we were all back together again and recaptured our sense of fun and laughter, remembering our times together, when it became clear that Ameena would not return to work again. Over the last year I have visited Ameena in hospital many times, my last visit just a week before she died, and even then although she was very ill, she still had her smile and her spirit always shone through, something that I think we will all miss, I know I will.

I would like to say thank you to everyone who wrote on the card and contributed to the collection for Ameena, which Phil has donated to ward 19 at Aintree Hospital, where Ameena and Phil were both looked after; Phil said to me the staff went that extra mile for them both The money will be divided between buying a piece of equipment for the ward and the nurses social fund. Alan Clark.

NEURO NEWS— NEWSLETTER FOR VOLUNTEERS OF NEUROSUPPORT MAY/JUNE 2010


MAY/JUNE 2010 ISSUE 15

CELEBRATION OF VOLUNTEERS’ WEEK

The first week of June was volunteers’ week. Volunteers’ week is an annual event which celebrates the fantastic contribution that millions of volunteers make across the UK, a time when we all get a pat on the back. The week plays a huge part in raising the profile of those who regularly contribute to society in this way, while inspiring others to get involved too.

On the 1st June, we met at Neurosupport for our celebration, with tea, cakes and company. Our chair of trustees Mr. Ken Morris and his fellow trustee David Britt joined us. Mr. Morris later presented certificates to volunteers. It was good to see some new faces, along with shall I say “The Usual Suspects”, but in a good way.

The raffle was won by Ron Kermode, his prize being a lovely basket of toiletries, which I know has now been divided between his daughters, after I mentioned to him that the beauty treatment wasn’t working. We all enjoyed the tea & cakes, along with lots of catching up.

So why do we volunteer? For me the answer is simple “To give something back”. This is probably the most common answer, along with “To meet other people”. There is of course the fringe benefits, i.e. food in the guise of Tony (“There is food left from the buffet, as some didn’t turn up for the meeting,”) Bonner. If you happen to work on the day when Tony says “help yourselves to food”, a plague of locusts springs to mind.

Recently, when we were asked by Danny Start to write something about ourselves, that he could use when the media contact him for items about Neurosupport. I had, as it happens also been asked to write my story, from the view point of a carer for someone who has had a Brain Haemorrhage, (in another role I am on The Brain Haemorrhage Support Group Committee). Here are a few extracts from my story, they may be something other carers will read & perhaps relate to. If you would like your story to be used either by Danny, contact him in the first instance, he can help you (if needed) to write your story. Let Danny know if you want it to be featured in our newsletter, he will then pass it to me for inclusion in the next issue; so to part of my story.

THE STORY OF A CARER, ALLEGEDLY,

AND WHY DAFFODILS MEAN SO MUCH

So why do daffodils mean so much? After 5 weeks of not leaving the house, (the shaved head down one side is not the best look on a woman), but with gentle coaxing, we had a walk down to Sefton Park and sat on a bench, surrounded by daffodils, in full bloom, for what seemed a life time, we both knew that we had been lucky, and life as we knew it had changed forever, we had been given that second chance.

Why allegedly a carer? well I am not sure who looks after who, as I have some health problems and as we both grow older we have slipped into a rhythm of life that suits us both. As I write this, in the Spring of 2010, 14 years later, the daffodils are still in bloom but some are fading and dying. I remember that time on the park bench, we both do, that wonderful day when we sat surrounded by daffodils. Life has been different for us both, work was not possible but volunteering for me was. We had gone to a meeting about brain haemorrhage and a possible support group that was held in the then Glaxo centre, (now Neurosupport) in Liverpool city centre. Over the coming months we went to meetings at this centre, by now 2 years had passed, and when I heard they were looking for volunteers to help staff the patient information desk at the new Walton Centre I signed up. “To give something back”, a phrase you hear a lot in volunteering, so in September 1998 I went on an induction course and have been here ever since. My role has changed over the years, although I still volunteer, I now also represent the volunteers at staff meetings, write a newsletter, and contribute to our own blog. Following my long association with The Walton Centre, when it achieved Foundation Trust status in 2009, I became a hospital governor. One of my other volunteering roles is being a committee member for The Brain Haemorrhage Support Group, a cause very close to my heart. To give my time and to help others in a similar situation, this has given me the greatest reward of all. So when our lives changed in 1996, maybe things did happen for a reason who knows. What I do know is that every year we always enjoy the daffodils and remember.

Alan Clark.