Tuesday 11 August 2009

Neuro News Issue 10 July/August 09


The pictures are not in the right order but if you can work it out answers on a postcard please
STOP PRESS AS THEY SAY THE DATE FOR THE CANAL BARGE IS 7TH OCTOBER PLEASE BRING BUCKETS IF YOU CAN IT WILL HELP WITH THE BAILING AS WE GO ALONG AND SAVE US ALL GETTING WET

Leaving for Pompey (The Case of the 2 Johns)
Sounds like an old episode of a Frankie Howard show “Up Pompeii”, but unfortunately it’s not, or maybe it is. John Waddicar has left our shore to live on different shores and for those who don’t recognise Pompey is slang for Portsmouth where John spent 20 years of life before returning to Liverpool and now he is returning to live there to be near his sister.
John has worked in Neurosupport for about 4 years and has been a valuable part of the team that helps or hinders the reception and also with the tea and coffee. As part of that team John has helped us all in many ways and we just want to wish him well in his venture to live again in Portsmouth. For those who don’t know John he bought a Smart car (Someone has to have one) not long ago, yes one of those that look like a golf cart but covered in although not as big and over that time John, I hope has taken as fun comments such as “Get that big bowl out John wants to wash his car” or “John can we lift your car on top of mine as the car park is full”
I know he will be missed by all as he would always fill-in when someone was off, so to new volunteers I hope you have as much fun and work in equal measures on reception answering the phone and greeting our clients and customers alike.
On a personal note at least he is on the World Wide Web, so I will be able to keep in touch that way although when his computer went down recently and would not take him on the internet highway he kept looking just in case it fixed itself, I think I know what he means.
Enjoy yourself John as we all have enjoyed your company.
One other to note that has left our shores for pastures new is “Young John” of the red hair fame who has managed at last to find himself a job, I know he had been looking for some time. He called in not long ago and with a new suit, collar and tie he did look smart.
Tea, buns and other things that make you thin
The first week in June saw the start of Volunteer Week and on Wednesday of that week we were all invited to Neurosupport to meet and have an informal chat, catch up on things and brought up to date on the new staff and certificates for everyone, make sure you get yours if you didn’t make the meeting, but mostly to enjoy tea and cakes. Some like me cheated and went to the shops but I notice one or two went that extra mile as they say and baked not a word that you hear these days of our throw away society when it all comes shrink wrapped and I still don’t know how they manage to stay fresh so long, sorry the cakes not us. It was nice to relax over a cuppa and listen to world of volunteering, so to the new volunteers I hope you are enjoying your stay with us and look forward to seeing you all over the coming months. As I write this on Sunday the next day 27th July will see the induction of more volunteers to our centre so please again make them welcome if you see them and to the not so new Neil, Tracy, Christina, Amanda, Bob, Garry and Joanne I hope you are all enjoying yourselves.
A Sunday strolls (Maybe not)


As you can see this is the start of our journey through the tunnel on Sunday 19th July 2009 and at the end of the article you will see that we all managed to make it through without anybody falling by the wayside although their were a few who cheated and sat in a wheelchair and were pushed!!!
My great nephew and his mum arrived at our house to start the journey that started some months ago with me saying at a staff meeting did you think it would be a good idea if we had a team to walk through the tunnel when it celebrates 75 years of being open in July It was a Sunday their were a few nods of yes that sounds ok and with myself, Maureen and mainly Carolyn we managed to put a team of about 30 together to raise funds for a community project that I call Gordon and how to publish a book of his poems.

Back then I thought that we had the backing of The Arts Council however that was not to be the case and later on it would look as though all the money for printing the book will have to come from funds and raising them through things like the tunnel walk as well as some money from The Walton Centre and the local Parkinson's group was the only way forward.

I am still looking for grants to help but at the moment we have managed with the help of all the people who walked through the tunnel to get near the target for printing Gordon's book of poems, but more is needed so if anyone has any ideas as how to raise more money please let me know.
Just to say thank you is not enough but thank you all anyway and here is hoping that we will all make it for the next walk in 75 years time maybe not for some but for my great nephew and a few other children who knows .
THE FINISH LINE WERE WE ALL RECEIVED OUR MEDALS
Just a quick mention to someone I met for the first time on the day Joe Paton, not content with the walk through the tunnel he has organised a stroll(18miles) along the Liverpool / Leeds canal on Sunday 30th August, starting around 7.30am at Scarisbrick and finishing at the Pierhead at around 12.00 noon. He along with 4 friends will be walking to raise money for Neurosupport where he meets for the Brain Tumour Support Group meetings and all money raised will go to help those meetings. So if you fancy supporting Joe in either body or money let us know. As regards “letting us know” if you want to put anything in the newsletter or think you would like to help in putting it together or just checking it before it goes out I can be reached at, alan.clark200@hotmail.com and you can leave something at the reception for me. Also check our very own website http://neuronewsletterspart1.blogspot.com

Our DAD Day out 12th July 2009
Just a mention to the day out that happens every year in the grounds of Walton Hall Warrington. This year saw the launch of two things our very own tee shirts(Used twice in 2 Weeks) and “Friends of Neurosupport” Friends of has been in the melting pot for some time and we choose the day as the popular event is well attended every year by around 25,000 visitors.

“Capacity to Engage” A celebration
The event was organised by Gillian who along with Karen and a face from the past Julia all worked hard in the project that was "Capacity to Engage"The event was held in the Lace centre at the edge of Sefton park Liverpool on 15th June 2009 and was attended by faces of the future and faces of the past.I would like to thank all for such a good day and wish everyone well for the future
Keith and a mountain to cross
Keith Edmondson has already raised £1044 for the MS Challenge 2009 on 4 July 2009 to support the very worthwhile activities of the MS Support Centre, Saltney, Chester.

He was carried by the “Ladies Men” team up the side of a mountain and across streams in Snowdonia for over 5 hours in the pouring rain and freezing cold. At the end of the challenge he was shaking like a leaf in his sodden Superman jumpsuit but had a real fun day with a super crowd of lads and lasses. Having progressive MS himself to raise so much money for many others even worse was a good feeling. With gift aid Saltney will realise another £300 which is so needed!!
A quick few words from Keith thanks for taking the time

Keith Edmondson
27 July2009 (my birthday!)

Volunteer Meeting Tuesday 21st July 2009

Maureen welcomed and thanked those present for attending. Those present introduced themselves and their role at Neurosupport.
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The group reviewed the minutes of the last volunteer meeting
Volunteer Birthday book has disappeared. All volunteers present are to add birthday to list and Pat and Wendy will update. New cards requested.
Friends was launched more to follow as on agenda.
Volunteer stories are still requested to us in publicity for centre, see Danny if you need help to write your story.
Events sub group met and pro-forma developed to deal with all events. Anyone with event idea needs to complete the pro-forma.
Fridge is installed and fully operational, taking are going well.
Walton Centre has sufficient numbers to be awarded trust status.
Good News: The Walton Centre on Thursday 30/07/09 at around midday was awarded trust status. Big thank you for all for filling in membership forms and for anyone who still wants to join the forms are by the kitchen on a table. Also if any support groups that might be looking for someone to come and talk about The Walton Centre and Neurosupport please contact me in the usual way.
It was noted by reception not all staff are using the ‘dot’ system. Remainders are to be put around reminding all staff, volunteers and visitors to sign in, use dots and wear badges. . Maureen informed staff of all new starters in the staff including those in the tenant offices.
Notably Lorna Mograby, Helen Munnerly and Jan Comer have joined to replace John Fox and work in Working Life Service. Maureen went through the current rota highlighting the gaps.
She also asked all volunteers to keep to the time they have agreed and try to arrive on time or call if they will be delayed. An induction for new volunteers is to take place Monday 27th July; this may fill some of the gaps. Telephone training will be held on Wednesday 5th August between 10-12.00 this is available for all volunteers. Please sign the sheet for this if you wish to take part.
Maureen informed the group of past and upcoming events.
DAD at Warrington launched ‘Friends’ of Neurosupport. Maureen explained the concept and development of this and circulated the flyer.
A large number of volunteers walked through the tunnel and have raised money for the centre. The final figure is still being toted up. (See photos and articles of the days)

Neurolife celebration – this is to be held in the centre 17th September, being run by some of the course participants to showcase the great work they are producing. The event will have music, art reading and displays, starts around 6.00pm at Neurosupport all welcome.
Charity Concert being held on 9th September organised by Frank, at Corner Stone, to raised funds for the centre. Three professional bands will be performing, tickets are £5 and there is also a raffle.
Annual review will be on 14th October all invited.
Canal Trip – this is still to be booked for early September, those wanting to attend should sign the slip before leaving.

Reception volunteers asked if the pigeon holes could be sorted.
Maureen updated all volunteers that we have written a policy regarding this. Guidance is for no one to attend the centre if they suspect they have swine flu.
For information Mervyn Peake awards are being displayed in the centre from 28th July
. Date and Time of the Next Meeting
Wednesday 30th September 2009 10a.m – 12noon followed by lunch.